The OSIC Data Repository is now live, and we couldn’t be more excited!
During the three years of the build, there was much debate, many hurdles and a lot of back and forth, but our singular focus was never wavered. It has always been, and will always be, on the patients. In that spirit, earlier today we gave patients a virtual sneak peek of the repository FIRST, before we announced it to the rest of the world. We talked them through what we did and how we did it, and reminded them that everything we do is with them in mind.
Thank you to all the patients who joined us virtually from around the world. And thank you to the American Lung Association , EU-IPFF , PF Warriors , and Action for Pulmonary Fibrosis for helping us get the word out. None of what we do would be possible without your collective support!